There is currently an NHS consultation for KUVAN treatment to be made available through NHS in UK. Deadline is 23rd April 2015. If you haven't already please go fill in the form.
INSTRUCTIONS:
Click on link here
"It has been well documented that The European Commission granted a marketing authorisation valid throughout the European Union for Kuvan (BH4) on 2nd December 2008. Kuvan is now being freely prescribed and used in countries such as Netherlands, Spain, Germany, France and Italy not to mention Turkey, America and Canada - however the NHS is still resisting. There is sufficient efficacy to support the claim that Kuvan is safe and improves blood phenylalanine concentrations, relaxes diet therapy and may improve quality of life for many PKU patients."
You can also find the instructions on NSPKU Facebook page. Just look for the post on their page.
INSTRUCTIONS:
Click on link here
- Scroll to bottom, click on “Complete the public consultation here”
- Complete “About You”
- Subject of response is “Clinical Commissioning Policy”
- Select “Sapropterin for Children Clinic Commissioning Policy” (4th from bottom)
- Click yes - top and no at bottom - then submit.
"It has been well documented that The European Commission granted a marketing authorisation valid throughout the European Union for Kuvan (BH4) on 2nd December 2008. Kuvan is now being freely prescribed and used in countries such as Netherlands, Spain, Germany, France and Italy not to mention Turkey, America and Canada - however the NHS is still resisting. There is sufficient efficacy to support the claim that Kuvan is safe and improves blood phenylalanine concentrations, relaxes diet therapy and may improve quality of life for many PKU patients."
You can also find the instructions on NSPKU Facebook page. Just look for the post on their page.
No comments:
Post a Comment