Monday 22 September 2014

PKU GEL AND WEANING

K is now 29 weeks. He has been weaning and getting on with his diet extremely well. He is enjoying his food and has a good appetite.

K started his weaning around 17 weeks old. He is now on stage 2 of his PKU weaning. The first stage of his weaning was just introducing him to PKU substitute -which contains essential vitamins and minerals- and some free food. We were given samples of Anamix First Spoon and Vitaflo PKU Gel sachets for K to try out once a day. We found that he didn't like the First Spoon and got on better with the PKU Gel. PKU Gels come in different flavours, he built up a taste for the raspberry one so we kept to it.

PKU Gel comes in 24g sachets. K is having half portions so we weigh out 12g and mix it with 15ml of boiled and cooled water. He has this mix before his food. We built it up from once a day to three times a day. His phe levels have been pretty good so he is now having 2g of protein (2 exchanges) a day. He also takes 60ml of Anamix and about 3 to 4 times a day breast milk.

He is a very happy baby, gives us lots of smiles. I say very often; he is almost reassuring us  'it's all right mummy and daddy don't worry about me. I am happy'.

List of Free Food that he has been enjoying:

  • Sweet Potato Purée
  • Butternut Squash Purée
  • Peach Purée
  • Pear Purée
  • Carrot Purée
  • Low Protein Hot Breakfast (on prescription) - He loves it mixed in with mango purée


We found that baby food jars (such as Hipp Organic, Ella's Kitchen etc) have been the best way for us to control his protein exchanges. We having been measuring out 1g protein equivalent of food and offering it after he finished his PKU Gel. If he is still hungry we offer him some free food from the above list.




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